Tuesday, May 12, 2009

My Experience of Fibromyalgia

In the spirit of National Fibromyalgia Awareness Day, I want to share with you my symptoms of fibromyalgia and what works for me so you can be aware of how this syndrome is affecting me and what I do to cope with it.

Every day I deal with:
  • widespread muscle pain
  • muscle spasms
  • stiffness in the muscles and joints, especially in the morning
  • muscle and joint aches with tender and trigger points
  • numbness and tingling in the hands
  • severe and debilitating fatigue
  • sensitivity to weather and temperature changes
  • sensitivity to some scents and chemical odors
  • sensitivity to medications
  • sensory overload and over stimulation, especially in crowds or noisy/busy environments
  • insomnia
  • sleep apnea
  • disturbed sleep patterns
  • unrefreshed sleep
  • heart palpitations
  • dizziness
  • reduced tolerance for exercise
  • chronic headaches
  • memory problems
  • communication difficulties
What Works for Me:
  • Resting when needed
  • Sleeping as well as possible at night
  • Taking medications (over-the-counter and prescription) as needed
  • Being aware of how much energy I have each day and scheduling my activities accordingly: pacing, planning, saying no, rescheduling as needed
  • Doing something fun every day
  • Making activities "fibro-friendly", i.e. gardening becomes fibro-friendly container gardening
  • Following the Golden Guideline: Pace = Play, Push = Pay
  • Limiting social activities outside the home to no more than once a week
  • Making my home a quiet sanctuary
  • Seeking help from others when needed
  • Finding a balance between treating my chronic health problems and living my life; learning to live my best life despite chronic illness
  • Finding a balance between being open to trying new things to treat my health problems and living within a budget; setting up trial periods to evaluate if something is working and stopping if I am not getting any benefits
  • Praying
  • Making a "NOT TO DO" list and delegating tasks I really have no business doing in my condition

Creative Commons License

Like this post? Then please...

Submit it to your favorite social sites.

Share it with PrintFriendly alternatives.

Print Friendly and PDF
Related Posts with Thumbnails

1 comment

Kelly said...

THIS IS AWESOME! It is so hard to begin a "new" life. I am still one of those push - pay people and right now this pay period has been almost a month. It is not worth it. Keep fighting my friend.