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Thursday, July 16, 2009

My Routine: Advice from "But You Don't Look Sick"

how to be invisibleImage by Grevel via Flickr
I'm conserving energy after a tumultuous Tuesday. It still amazes me, even after almost five years, that an unexpected expenditure of energy results in increased symptoms for the next 24 to 72 hours. If I deviate from my routine, dysautonomia, fibromyalgia and chronic fatigue are unforgiving! So I am using my "bad day" routine: increase rest, cancel plans and increase sleep.

So I have taken a little time to collect a list of links for you to explore at your convenience. These articles are from the But You Don't Look Sick website, the online magazine created by Christine, a blogger, speaker and patient advocate who happens to be living with lupus. I took a little time poking around here today and discovered that The Access Pass is a special, FREE pass for people with permanent disabilities that offers FREE access to the National Park System. So if I had gone with my Cyndie to Yosemite, I would be entitled to free park entry and discounts on campsites, guided tours,park transportation, concessionaire fees and special use permits.

So cool! Now I just have to find an off-road mobility scooter and I am set!

Enjoy But You Don't Look Sick and I'll be back soon with another post!



ButYouDontLookSick.com:"Addition by Subtraction" - Sometimes Less Is More

ButYouDontLookSick.com : Personal Essay: Baby Steps, People

ButYouDontLookSick.com : Surviving Becoming Permanently Disabled

ButYouDontLookSick.com : A Lesson in Adapting from my Dog

ButYouDontLookSick.com : The Power of Silly!

ButYouDontLookSick.com : Stepping into the Shower with Chronic Illness

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