Friday, March 2, 2012

Me & Hep C: Week One of Treatment Completed

It's time to celebrate!

Week one of Hepatitis C treatment has come to an end...only 23 more weeks to go.

As someone much wiser than me once said, "A journey of a thousand miles begins with a single step." Well today I have finished 7 of the 168 days of my Hep C treatment journey.

To prove to you all that I am doing OK, (or that I am just a really good actress, LOL!) I recorded this video to mark the occasion:

video


Video Transcript

Hi, this is Selena from the blog Oh My Aches and Pains!  And I have just completed, with your help, week one of my hepatitis C treatment. 

I could not have done this without you guys, with all of my Selena's Hep C Treatment Supporters.  You guys are the best with your messages, your (Facebook) wall posts, your "Likes", your tweets,  your comments, your e-mails.  You guys are really helping me to keep my spirits up and keep me focused on my goal here which is to beat Hepatitis C. 

If you haven't already headed over to SignUp Genius and signed up for a support mission, hey head over there now.  I've got 24, no 23 more weeks of this treatment to go, so I can use all the support I can get!  And if SignUp Genius doesn't work for you, hey that's cool; do whatever works for you.  Just keep those messages coming and I can't tell you how much they mean to me.

Now I do want to let you guys know that I have already had some side effects this week, but so far everything has been manageable. 

I've also been dealing with a little bit of stress with my healthcare providers, trying to getting them to listen to me and incorporate some of my needs into the treatment protocol.  I found out before I started treatment that we really have to watch my red blood cell count closely because if I get anemic from treatment it's going to make my dysautonomia worse.  And dysautonomia is what got me into trouble last time I tried the Hepatitis C treatment and it made me have to stop the treatment after three weeks.

You know, this has kind of involved calling some of my other healthcare providers, not the liver people, to get them involved.  And I also made a choice to call Patient Relations when I felt like hepatology folks weren't really listening to me.  You know I was a little apprehensive about doing it, but what has come out of that is an appointment Tuesday with my doctor (and) with the hepatology nurse. 

And I'm feeling a little more confident today that if we get to sit down and talk, like we are going to be able to, that we can figure this out and come up with a plan, involve more of my other treatment providers if that's appropriate, and then we can kind of just move forward.

My whole big thing is that I want us to be prepared and they want us to try to catch things early if I'm going to have side effects so that they don't become big deals.  So I'm hoping this approach will work and obviously I will let you guys know (the outcome.)

Again I want to thank you so much for all of your support and I can't tell you how much I appreciate it.  And so now I've got to get my act together and start making some of those cool giveaways for my end of Hep C treatment party I promised you guys.  So, keep sending the support, I am going to keep putting your names into the raffle for the end of treatment party.  I will also share with you as the weeks go on, some of things I'm going to make, the cool kind of give away things.  I think you guys are going to like them.

But anyway, I just wanted to let you know that I'm here and I'm doing okay.  And thank you, thank you, thank you!  And I think that's it for now.  So take care everybody and have a great weekend and I will talk you again soon.

This is Selena from the blog Oh My Aches and Pains!  One week down, 23 to go.  Woo hoo!

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1 comment

Kathy said...

All the best as you continue your treatments. Kathy, FibroDAZE