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Showing posts with label review. Show all posts
Showing posts with label review. Show all posts

Friday, January 23, 2015

Will accurately portraying life with chronic pain be a piece of Cake?

Lemon Cake Inspired By Thiebaut by DarisArt

My friends living with chronic pain and fibromyalgia are all a buzz about a new film called Cake.

According to Variety.com, the movie tells the story of Claire Simmons (played by Jennifer Aniston) who struggles with both chronic pain and a painkiller addiction.  It addresses the issues of suicide, grief and separation with a "darkly amusing" combination of humor and drama.

The story begins with the suicide of Nina, a member of the chronic pain support group that Claire attends.  After her death, Claire gets obsessed with Nina and starts an affair with Nina's husband (Sam Worthington.)  The story features Claire's support group leader (Felicity Huffman), housekeeper and physical therapist, as well as her husband.

Another article at Variety.com focuses on the fact that Jennifer Aniston doesn't wear make-up for this role.   According to the film's director Daniel Barnz, this is to show that Claire doesn't take care of herself.

A lot of my friends are sure are excited about someone with chronic pain being the main character of a movie.  The hope is that this character will somehow validate all our pain experiences to the doubters and disbelievers in our lives. I haven't seen this movie yet.  Neither have any of my chronic friends.  But we'll get our chance when the movie opens wide today in the USA (after a limited release in December 2014.) 

I do have some thoughts about all the press this movie is getting and all of the comments it has generated over on the Variety.com website.

First, I am concerned that Variety review says this movie is "...falling back on one of the hoariest and most overused of movie cliches..." and "...this manipulatively layered “Cake” probably won’t rise to the occasion..."  Ouch!

Second, while I guess being an actress and forgoing make-up for a role is some kind of Hollywood accomplishment, I think the explanation for why Claire doesn't wear make-up -- because she doesn't take care of herself -- is a little one-dimensional.  After all, I live with chronic pain and don't wear make-up, not because I don't take care of myself, but because I choose to forgo makeup and use my energy for other things I think are more important, like cooking or going to a doctor's appointment.  Which begs the question: does this movie really explain what it is like to live with chronic pain or does it just stereotype this condition?

Third, I am really concerned about how the story paints the picture of  Claire, the painkiller addicted chronic pain patient, because the fact is addiction is not common among chronic pain patients.  According to an evidence-based review of all available prior studies published in the medical journal Pain Medicine in 2008:
"...chronic opioid analgesic therapy exposure will lead to abuse/addiction in a small percentage of chronic pain patients..."  

Specifically, the risk for abuse and/or addiction was found to be on average about 3.27%.  They found that the greatest predictor of pain medication abuse or addiction was a current or past history of alcohol and/or illicit drug use, abuse or addiction.  Their recommendation? Pre-screening patients for these problems before prescribing opioid analgesic therapy.

Given all the changes that happened in 2014 with tightening access to narcotic pain medications, I'm afraid Cake is just going to be a visual aid for the public, feeding misconceptions about painkiller abuse.

Even healthcare professional have misconceptions about the proper use of narcotic pain medications to treat chronic pain.  Just this week, a prominent doctor in the field of fibromyalgia and chronic fatigue proclaimed, "You'll be pain free, because you'll be dead. Taking opioids for chronic, non-cancer pain increases your risk of death by 72%, according to a recent study in the journal Pain..."

I read a summary of that journal article and found it full of contradictory information.  For example, some researchers think that it's only the patients who obtain their narcotic pain medications from "nonmedical sources," like Claire in Cake, that overdose and wind up in the ER.  Then there is this quote (which I edited just a tiny bit for clarity):
"Safe and effective treatment of opioid-sensitive pain is possible... It requires deep pharmacological knowledge, experience, resources, considerable patience, and mental energy from a group of helpers who are able to take care of the whole bio-psycho-social conundrum of the chronic pain patient."  

That sounds exactly like what happens in my pain management doctor's office.  Hmm, too bad Claire didn't come and see my doctor.

But then again, someone treating their chronic pain appropriately with narcotic pain medications probably isn't the most interesting or provocative subject for a major motion picture, is it?  Hollywood loves misfits, even chronically ill ones.

Watch the trailer for Cake.


My most heartfelt advice for those who live with chronic pain and decide to go see Cake?  Don't get your hopes up thinking it will appropriately portray or advocate for the needs of people living with chronic pain.  Oh, and take it with a whole shaker of salt!

Until next time...


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Tuesday, November 13, 2012

My Favorite Smart Phone Health App #NHBPM

Do you often ask yourself, "Did I take my last dose of X?"  Well then, this is the app for you!

The main function of the Med Helper app is to help you create a schedule for all the medications and supplements you take on a regular basis, whether that's daily, weekly, monthly or something in-between. Then, when it's time to take your medicine, you can set an alarm to remind you.

Plus this app can also track medications you take as needed.

If you put in the time and effort, you can even have this app track your inventory of medications and let you know when you need to order refills. How cool is that?

There are also menus for noting your vital signs (like pulse, blood glucose and pain level), notes about your health care and contact information for your doctors and pharmacies.  You can also schedule and keep track of your medical appointments and create multiple user profiles (for yourself, your spouse, your kids, etc.)

There is a comprehensive reporting menu which has the ability to export all the information you entered as spreadsheets attached to an email or saved to programs like Evernote.  At some point the folks at Med Helper say they will be adding a cloud backup feature and I would gladly pay for the Pro version to use it.

There is some work involved to get started, so be prepared because it will take some time to enter in all your prescriptions, especially if you are taking multiple medications. But once they are in there, you are good to go.  Plus if you stop a medication, there is no need to delete it, which is helpful if you ever need to start taking it again in the future.

I tried several similar app before I found Med Helper and I think this is by far the best one.  It is a pretty comprehensive app, but after using it for a while I do have some suggestions for making it even bettert:

  • add a sync function to the Android contact and calendar for the doctor and pharmacy contact information and appointment scheduling
  • allow the user to create a medication schedule based on the time of day (morning, noon, evening, etc.) instead of specific times (8 am, 12 PM, 7PM)

I was so impressed that I rated Med Helper 5 stars on my review at Google Play.

Quick App Facts

Med Helper

available for Android and iOS

requires Android 2.1 and up

rated 4.3 out of 5 on Google Play

downloads: between 50K and 100K in the last 30 days on Google Play

current version: 2.5 1 1

last updated: 9/11/2012

price: Lite free
           Pro $3.99
website: http://medhelperapp.com/

Screenshots (click to enlarge)




From the Google Play website:

Description

Prescription and Pill reminder. Full featured with logging and data export.  Your healthcare assistant.

MedHelper tracks medication, treatment and appointment schedules and stores information for accurate prescription inventory, gentle reminders and an ongoing exportable log. Taking the right medication at the right time is essential to your personal healthcare. Never miss a dose again.

Features:

-Multiple profiles for family healthcare coordination.
-Alarm reminder with snooze.
-Log of past doses.
-Track multiple prescriptions and inventory.
-Track vitals.
-Record Healthcare team’s contact information and appointments.
-Record Pharmacy information and prescription notes (refills available, etc.)
-Flexible scheduling.
-Exportable reports.

Overview:

Med Helper is designed to require minimal input. For simple situations it can be configured in a couple of minutes. Use it to track prescriptions, refills, medications, doctors, pharmacies and relevant personal info such as allergies.

Notifications alert you when it's time to take medication allowing you to record the specific dosage, snooze the reminder or skip the dosage entirely. Can also be used to track dosages for take as needed medication to help stay within the recommended hourly limits.



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