tag:blogger.com,1999:blog-1190707857355048493.post2063747234414864844..comments2023-09-01T02:29:46.008-07:00Comments on Oh My Aches and Pains!: Hepatitis C Treatment & Little Miss GrumpyAnonymoushttp://www.blogger.com/profile/02063470589933197328noreply@blogger.comBlogger4125tag:blogger.com,1999:blog-1190707857355048493.post-34051558515125723662013-05-19T11:05:16.557-07:002013-05-19T11:05:16.557-07:00Hi there, I went through a similar tx for Hepatiti...Hi there, I went through a similar tx for Hepatitis C. I had a "specialist" who's only interest in me was getting me on his trial.<br />When I had side effects he told me to go to my primary doctor. She did not understand why it was up to her to treat SX that the "specialist" was giving me.<br />I did not understand either and I was was so sick all I could do was cry. <br />It sounds like they are going to make tx of Hepatitis C an orphan.<br />It is disgusting to me. The only good thing I can say is that I made it to 24 weeks of Incivek, Peg, Riba and am now SVR.<br />I feel sorry for anyone who has to treat, suffer side effects and manage their own care.<br />Best wishes to youDee1956noreply@blogger.comtag:blogger.com,1999:blog-1190707857355048493.post-55757856268027225502012-09-08T19:44:55.734-07:002012-09-08T19:44:55.734-07:00Selena I really get it. I was sick with& after...Selena I really get it. I was sick with& after treatment & still have not gotten well enough for another treatment, because of ongoing side effects debilitatng me. I finished treatmenf Feb 2011. I have had the exact problems., no one cares! Know why? It is called HEP c ( leperacy) not Cancer or leukemia !<br />You can be Little Miss Crabby as long as you want!<br />Praying for you, everyday!<br />Your friend & <br />Hep C warrior MargeeMargeehttps://www.blogger.com/profile/11655243133541804581noreply@blogger.comtag:blogger.com,1999:blog-1190707857355048493.post-12169398985110247772012-08-28T15:24:50.384-07:002012-08-28T15:24:50.384-07:00I"m so sorry you're going through this; I...I"m so sorry you're going through this; I've been there with other dr.s in the past; I feel like I'm running the show & they've lost interest. <br /><br />I don't know anything about their hepatology department, but I have had great experiences with the dr.s at USC (Neuro, Pain clinc, etc.). I hope you can find a better set of dr.s to help you!Emilyhttps://www.blogger.com/profile/17136475934858797611noreply@blogger.comtag:blogger.com,1999:blog-1190707857355048493.post-52274294620053134082012-08-28T11:55:31.129-07:002012-08-28T11:55:31.129-07:00I think expecting them to help manage your side ef...I think expecting them to help manage your side effects should be a given. The bums! Sounds like you have every reason to be grumpy. HOpe you start to feel better and can find a better team for the future.Migrainistahttps://www.blogger.com/profile/05473496432554201124noreply@blogger.com